For the Newly Diagnosed Patient – Prostate Cancer, Now What?

 By

Lisa-Paula da Silva, MSW - Oncology Counselor, Foshay Cancer Center at Jupiter Medical Center

A diagnosis of prostate cancer can be frightening and overwhelming. You will likely have many questions and at the same time not know what questions to ask. This is a difficult time, however by speaking openly with your doctor and conducting some research you will gain a better understanding of what you need to know and what questions to ask. I encourage you to be honest and frank with your doctor; no question is too small. Keep a small notebook or pad with you and as you think of questions write them down. Sometimes, when a patient enters their doctor's office the questions they were going to ask seem to slip out of their mind and they once again feel lost. By keeping a log of questions and answers and being proactive you will be better able to cope with the changes that your body and mind will go through. Some of the questions that you may want to ask are listed below. Add your own questions to the list as you think of them.

What is the exact type of cancer that I have?    If you do not understand the response, ask the doctor to write it down.

What is the clinical stage of my cancer and what does that mean for me?    If you are unclear ask your doctor to explain things.

Is there a chance that the cancer has spread beyond my prostate?

What further tests do you recommend and why?

Is active surveillance an option for me?

What treatments might be appropriate for me and why?

What are the risks and side effects of those treatments? How might those side effects be managed?

Will I have problems with incontinence or impotence? How about other urinary or rectal problems?

What are the chances of a recurrence following your recommended treatment?

Should I follow a specific diet?

You may also want to request a copy of your pathology report and ask that it be explained to you.

Other members of your treatment team may also be able to answer many of your questions.

When meeting with your doctor, it is advisable to bring a spouse, partner or friend with you. This person can take notes for you and may think of questions to ask that may not have crossed your mind. This person may also provide support, which may help you cope with your diagnosis and treatment.

If you are not satisfied with the information you receive or the treatment options discussed, you may consider getting a second opinion. A second opinion can give you more information, help you feel confident about the treatment plan chosen, and provide reassurance. Your doctor should be able to refer you to another oncologist who can provide this second opinion. You may also want to contact a prostate support group to learn how others have navigated their way through prostate cancer.